ALS in the Heartland

ALS in the Heartland provides the highest quality of support and care to individuals with ALS (Lou Gehrig's Disease) and their families.

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Address: 1320 S 119th Street
Omaha , NE 68144
Phone Number: 402-592-2374 ext. 202
Fax: 402-592-2581
ALS is a motor neuron disease with no current definitive explanation of the cause, no known treatment, and no recognized cure. Upon diagnosis, individuals with ALS are typically given 2-5 years to live. It is a devastating, fatal disease that robs people systematically of their abilities - loss of the ability to move their legs, to walk, to write or move their arms, to eat, to swallow, and to talk. At the end of the disease cycle, people with ALS are held captive in their bodies which are unable to move besides the blink of their eyes, all while their cognitive abilities remain the same.

ALS in the Heartland (ALSITH) is a 501(c)3 nonprofit agency that serves individuals with ALS, their families, and caregivers in all of Nebraska and western Iowa. All donations given to ALSITH during Give Where You Live will be designated for ALS patient families in the Kearney Area.

Free services provided by ALS in the Heartland and their impact include:

- Education, guidance, and community resources: Our agency has a variety of ALS specific information available, as well as referrals to numerous community resources. Please
reach out to ALS in the Heartland for reading materials, relevant videos, and helpful websites on everything from basic information about ALS to detailed descriptions about all
facets of the disease.
- Individual and group support: ALS in the Heartland has been honored to work with hundreds of families impacted by ALS. Our primary goal is to provide support, and - if needed,
individual or group counseling- through the Patient Services team. Every individual is connected with an agency social worker who provides emotional support, advocates on your
behalf, connects you with resources, and answers your questions. These services can be provided in person, by telephone, or through other means such as Skype, e-mail, or text.
Individuals and families may also find ease in using the agency's Telehealth program which provides high-definition webcams to allow for secure, expedient connection to the
Patient Services team.
- Respite grant program: Often a big concern for individuals and families touched by ALS is quality in-home care. Balancing the emotional and physical needs of caregivers can be
an ongoing challenge. Respite care is intended to provide a safe environment for the patient while the caregiver addresses personal needs and daily responsibilities. Respite can
relieve stress and prevent caregiver burnout. To help with this, any ALS patient who resides in Nebraska or western Iowa, and who is registered with ALS in the Heartland, is
eligible to apply for our Respite Grant Program. ALS in the Heartland provides payment to a professional home care agency or individual for respite care.
- Equipment Loan Program: ALS in the Heartland loans or purchases various equipment at no charge, such as mobility items, communication devices, shower/tub chairs, and daily
living aides. We also have access to other community resources that loan equipment
- Children's Funds: Many families touched by ALS are most concerned about the disease's impact on the children in the home or family. ALS in the Heartland has many important
resources to aid in talking with children of all ages about ALS. Additionally, Children's Funds are available for ages 18 and younger that assist the family in promoting normal,
desired activities for the kids by relieving some or all of the financial burden.
- Alternative Services: Just as ALS is unique to every individual, ALS in the Heartland provides unique services to every individual and their family. Whether that is through financial
requests, legacy work, transportation support to medical appointments, or something else.
- Referrals to Experiences Medical Professionals: ALS in the Heartland has a good working relationship with ALS Clinics and medical professionals that specialize in ALS
throughout the area and can assist individuals in accessing appropriate and needed medical services. We are fortunate to act as the social workers on a multidisciplinary team in
Dr. Gary Pattee's MDA Care Center for ALS Patients.
- Volunteers: Our agency has a team of volunteers who are willing to help patient families with everything from yard work to building a ramp for easier accessibility to their place of
residence. Volunteers are also available for companionship, respite, and assistance with household errands or chores.
- Advocacy and Research: ALS remains a rare and often unknown disease. Although not doing the work ourselves, ALS in the Heartland strives to increase community awareness
of this disease and promotes research efforts both in our local area and those that are occurring on a national basis. Additionally, ALS in the Heartland follows legislative advances
in Nebraska, Iowa, and the entire United States that would benefit individuals and families impacted by ALS.

ALSITH is not funded by, or affiliated with, the National ALS Association. All funds raised by ALSITH remain in Nebraska and Iowa to solely and immediately support people with
ALS living in those states.
• "We are grateful for ALS in the Heartland providing support for our needs and encouragement for our struggles" - a loved one of a recently deceased ALS patient, age 31.
• "ALS in the Heartland has been a tremendous source of assistance where we find nothing available in our area" - an ALS patient in rural Nebraska, age 79.
• "Thank you for all the things you have done and continue to do. The compassion you show is critical to surviving the ALS ordeal" - a husband of an ALS patient, age 62.